If you are looking for online resources about Interstitial Cystitis, perhaps the biggest and most well-known website is www.ichelp.org. This non-profit organization provides a variety of online resources for those suffering from Interstitial Cystitis or those who just want to learn more. This valuable website is packed full of information from pages about diagnosis and treatments to tool kits and downloadable content for social media purposes. Their goal is to educate people, medical professionals, and leaders on Interstitial Cystitis (IC), raise general awareness about IC, and advocate for research that aims to find better treatments and/or a cure.
When you have a chronic condition like Interstitial Cystitis it can feel very isolating. Feeling like there’s nobody else out there who “gets it” can be depressing. People might tease you about how much you use the bathroom or dread going on road trips with you. One of the goals of this website is to show you that there are millions out there just like you– and if you want to reach out and connect with other sufferers there are places to do that. If you want to join an online support group or even just join a Facebook group, ICHelp facilitates it.
Although the website is packed full of tips and medical advice, do not self-diagnose or self-treat. It is still incredibly important to see a specialist and be evaluated properly.
To visit IC Help visit www.ichelp.org.